Why Scoliosis?

Posted by admin in Scoliosis

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Scoliosis is a personal passion of mine. Some have asked what drew me to this cause and I respond by saying “I didn’t choose

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My PIC in 2007 after another Scoliosis Revision Surgery

Scoliosis, Scoliosis chose me” and I really wouldn’t want it any other way. I have been dealing with my Scoliosis for many years now, since roughly 1999. Now 11 years

later I have been through three spine braces, seven spine surgeries, a hip surgery and multiple physical therapies all while going through school and trying to be a normal  girl.

When I first found out I had Scoliosis I was crushed, to me my life was over. I didn’t really know anything about this weird thing called “Scoliosis” and didn’t really try to find out. I thought if I’d avoid learning about it somehow it would magically go away… No such luck, after a few x-rays and seeing a Pediatric Orthopedics specialist I was informed my case of scoliosis was consider severe. I was braced for about a year and half, then had my first of many surgeries to correct my curve. I felt so alone, although I had a very supportive family, it just didn’t seem fair. Kids my age couldn’t relate to what I was going through on the inside and outside. Plus lets face it in middle school it doesn’t take much for you to be consider a freak.

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Wearing my TSLO Brace. Having Fun with my little sister. Guess your never told old for dress up?

It took me a lot of years to want to open up and talk about my personal pain, my surgery and my life with Scoliosis. I want to spread awareness in hope of others to understand and so they know that they are not alone. Scoliosis is not a death sentence. You can lead a very active and healthy life with Scoliosis.

Even though scoliosis is such big part of me I don’t let it be the only thing defines me. I’m more then just a girl with a curved spine. I have an activist mind set. At the age of seven I declared I was joining the Peace Corps. I whole heartily believe in going Green and saving the Whales. I also love Okapis, which sadly are endangered, I think we should try to save them too. They live in the Congo which is at war right now so they are used to as “Bush Meat” to feed soldiers battling in the Jungles of Africa. I have a huge love of art. I could draw all day long and it couldn’t make me happier. I have so much drive, I know I can do anything I set my mind to. No one and no disorder will stand in my way.

I am so proud of my Scoliosis now. Having this disorder has shaped my outlook. I see things from a totally different angle then most. I feel like it has given me such a heart to serve and reach out to others effected by Scoliosis.  I have really truly embraced my personal battle with Scoliosis with open arms. Of course not everyday is easy, but every scar, every memory (even the bad ones) has effected who I am today. I will never forget who I am and what I have been though.  I’m Alana, I have Scoliosis, and I’m fabulous.

Screen shot 2011 11 03 at 1.09.07 AM1 Why Scoliosis?

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  • Erica Ehart

    I think you are a brave young lady. Thank you for taking the time to make this website. It’s really special that you take the time to reflect on these things going on in your life. I think it’s special that you have embraced your battle with Scoliosis. I’m sure it is not easy all of the time. In fact it’s probably really difficult on days. Just know God knows. I hope that as you go on day by day that you will continue to be comforted by God. Good job with your website! It was really good to read, and I hope that you can continue to share your story.

  • Kerinn

    I am so proud of you and all you have acomplished. This website gives teen girls who are young a chance to relate and help spread awareness.. You have turned something most people would consider horrible into something that people can openly talk about now. Your an amazing sister, and an amazing idol for people to look up to.. Keep up the hard work!